“Is she breathing?” My 7 year old son asked as nonchalantly as one would ask “what’s for dinner?” Or “how’s the weather?”
He knelt beside his little sister pressing her oxygen mask to her face while her body jerked about in a Convulsive seizure.
Her abdomen was tight and her breathing shallow.
“Is she breathing?” He asked— As if that was a normal question.
And that’s when the reality of this life for him hit me like a ton of bricks.
.
Sometimes I think the siblings get left behind.
But this journey belongs to him as much as anyone else.
He knows so much more than I did when I was seven. He has experienced so much more—- more trauma to be honest.
Since he was just a toddling two year old he has watched for seizures, and yelled for mom, and learned when to occupy himself and when to try to help.
He asks “is she breathing?” because he has heard me ask that same question a hundred times. Sometimes just as calmly. Sometimes through panic and tears. And his response also varies.
While I find myself often fighting to normalize his life—
I also find myself wanting to shout HE is not normal.
